Vulvodynia is a complex disease with no identifiable origin that affects the external part of the female genitals . It compromises the sexual life of women and can affect all normal daily actions , such as urinating, sitting, wearing pantyhose, playing sports, sometimes even walking.
The worst aspect of vulvodynia is the difficulty in diagnosing it unequivocally and quickly. In fact, despite estimates indicating an incidence of the pathology in 1 in 8 women , it has not received any attention in the past from the general public and the scientific community . Consequently, it has remained unknown for a long time to women, who have not been able to help and discuss it, and to medical specialists, who have not been able to diagnose and treat it.
In recent years, there has finally been a progressive awareness: for the masses thanks to the spread of knowledge via the Internet, social networks and non-profit associations; for professionals thanks to specific training courses for pelvic floor health and the lively debate around the proposed law for the recognition of vulvodynia and pudendal neuropathy.
Double V Project
Doppia V Project is a crowdfunding project to support research on Vulvodynia promoted by the Doppia V Group. The group is composed of:
- Valentina Proserpio: molecular biologist and researcher at the University of Turin. She teaches genetics to second-year students of Biological Sciences. Together with her collaborators, she wants to study this pathology more deeply. Valentina Proserpio - Google Scholar Linkedin Valentina Proserpio
- Silvia Fiamberti Graphics: responsible for the project style. www.equilibrario.com
- Emilia Fusi: Jewelry designer, responsible for the gadget line for the project www.joyemy.com
- Antonella Managò: Molecular biologist and PhD. She works in the field of academic publishing and scientific communication Antonella Managò
The group describes its mission as follows:
We thought about a fundraiser because there are not many funds available today for the study of chronic pain and the competitions are very competitive. We therefore thought of moving forward thanks to the generosity not only of patients and families but also of each of us.
Thanks to the advanced molecular biology techniques available in our laboratories, we can help patients by finding a method to first diagnose and then lay the foundations for the treatment of this disease. The greater the number of patients that we will be able to involve and analyze in our project, the greater the chances of identifying an effective diagnosis and perhaps in the future even a cure for Vulvodynia, without excluding the possibility that the same mechanisms are common to other similar diseases such as pudendal neuropathy or fibromyalgia.
The group also outlined the goals set for the fundraiser that will begin on November 19 and end 52 days later, on January 9. The first goal is 10,000 euros and, if not reached, donations will be returned to donors . The ceiling of the amount, if reached, will increase by another 10,000 euros at a time up to a maximum of 100,000 euros . The proceeds will be used to offer accurate and free tests to patients affected by vulvodynia.
We are here, this is our part!
Dr. Tili's Remedies has always supported the cause of the recognition of Vulvodynia and this time too we have decided to do our part: from November 24th to December 4th we will donate to the Doppia V Project the entire proceeds from the sale of the products Purnonerv® CBG , Puronerv® Dol , Purofem® Doderlein and PuroCol® Flor .
And you, are you there?
Widespread diffusion is the key to the success of the project. Sharing the campaign link on social media and the link to the Doppia V Project Instagram page would be a great help, even better with a post on your favorite social media. Tell your friends about the project and, if you want, make a donation from this link .
By donating to the project you can also win one of the prizes made available by Team Doppia V. One of the key points of the fundraiser is the distribution of t-shirts, shopping bags and pins that aim to spark debate on this disease.
